Thursday, June 14, 2007
Services Desired By Parents
This is a place to list the services that you as parents currently use or support because you have used them in the past. This is not a place to discuss you opinions about the validity of these services only list the services you have used or are currently using. I would like to see a list of services that you would like to use but do not have the financial ability to give your child placed in a separate comment called WISH LIST. Please take a minimal amount of time to list your personal (not science or research data just your personal reasons you may refer to research you have read only in a generic sense) reasons for wanting this service. Please use my comments as an example.
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6 comments:
Sidney Age 13 Asperger's co-morbid with Dysgraphia, Hypotonia, Sensory Integration Dysfunction, Semantic/Pragmatic Language Dysfunction and Depression
1.Occupational Therapy (Dysgraphia and Hypotonia)
2. Speech Therapy (Semantic/Pragmatic Language Dysfunction)
3.Down Time, Quiet Spaces, Self- Directed Segregation (Sensory Integration Dysfunction)
4.psychiatric counseling, self-advocacy skills, social stories (Depression, Asperger's Syndrome)
5. Developmental Therapies (Asperger's Syndrome)
6. Self Care/Life Skills (Asperger's Syndrome)
Dietary Supplements (Dietary Deficiencies caused by Sensory Integration Dysfunction)
Joshua 6 Autism co-morbid with Hypotonia, Sensory Integration Dysfunction, Dyspraxia, and GERD.
1.Occupational Therapy (Sensory Integration Dysfunction and Hypotonia)
2. Speech Therapy (Dyspraxia)
3. Down Time, Quiet Spaces, Self- Directed Segregation (Sensory Integration Dysfunction)
4.Metoclopramide (Reglan), a "prokinetic" agent that increases muscle tone of the lower esophagus sphincter. (GERD)
5. Developmental Therapies (Autism)
6. Self Care/Life Skills (Autism)
Dietary Supplements (Dietary Deficiencies caused by Sensory Integration Dysfunction)
Charity 4 Autism co-morbid with Hypotonia, Sensory Integration Dysfunction, Apraxia of Speech, and GERD.
1.Occupational Therapy (Sensory Integration Dysfunction and Hypotonia)
2. Speech Therapy (Apraxia of Speech)
3. Down Time, Quiet Spaces, Self- Directed Segregation (Sensory Integration Dysfunction)
4.Metoclopramide (Reglan), a "prokinetic" agent that increases muscle tone of the lower esophagus sphincter. (GERD)
5. Developmental Therapies (Autism)
6. Self Care/Life Skills (Autism)
7. Dietary Supplements (Dietary Deficiencies caused by Sensory Integration Dysfunction)
All Therapies/ Services We Use or Have Used in the Past:
Psychiatric Counseling
Self Care/Life Skills
Developmental Therapy
Medical Interventions
Dietary Supplementation
Speech/Language Therapy
Occupational Therapy
Educational Supports
Testing we have had done:
Educational Testing
Social Emotional Testing
Toxicity Testing
MRI
Genetic Testing
Wish List
Water Therapies because Joshua has had 15 occasions to speak in a full sentence out of the water and 20 occasions in the water in his 6 years. (He has spent less than 1/10th of his life in the water which makes these numbers significant)
Animal Therapies becuase 1/3 (5) of the times Joshua has spoken outside of the water has been while interacting with an animal.
Swimming with Dolphins specifically becuase it combines two areas where we have had positive results from Joshua in the area of verbal language usage.
Assistive Communication Device for Joshua becuase he can read, spell, and type. He uses one at school but we need one at home.
More Developmental Therapy and Self Care/Life Skills service hours. The children do well through these therapies because they are in a "natural environment" and we need the people that are doing them above and beyond what they are getting paid to get paid for all their hours. (We are blessed to have people willing to help us with the children with or without pay out of love for the children and respect for what we are trying to do. However, they need to feed their family and pay their bills so they need to get paid.)
Dietary Supplements of the parents choice covered by Medicaid and other insurances.
Spydyee, you definately seem more resourceful than me.
Things we have used in the past and/or are using in the present.
My daughter is 10, hf autie or may be on the lower end of aspie, very ADHD, dyslexia, hypotonia, receptive and expressive language problems.
1. Brushing, weighted vests, joint compression. That was mostly the school.
2. Speech, occupational and phyisical therapies.
3. Nutritional and dietary interventions.
4. Social stories
5. Massage therapy/ cranial sacral therapy.
6. chiropractic
7. Full neurological work up with genetic testing.
8. Detoxification and other related therapies.
9. Respit. I need to get on a respit waiting list again, but she is so good at home we have no problem with getting regular babysitters.
10. Her autism itinerant has set up a girl's group at the school to try to help my daugher develop friendships- I don't know if that is a therapy specifically.
Wish List: (more time to do things)
1. Vision Therapy- trying to get the insurance to do this one
2. Auditory integration
3. Horse riding therapy
4. I want to get her involved in some kind of activity that will help her make friends.
Sam, age 10, Autism
Speech, OT, PT, chelation, MB-12
Wish list;
HBOT
E. age 5, Autism High Functioning
co-morbids include Eosinophilic Esophagitis, Severe Allergies, Aphasia (quite possible to be an Apraxia but very hard to differentiate)
Early Intervention
1. Occupational Therapy
Fine Motor, Sensory Intergration, Bilateral Coordination. Did try brushing, joint compression, weighted vests at home, massage.
2. Speech Therapy 3x/week
articulation, receptive language / vocabulary, low oral tone, word retrieval, processing, following multiple directions, pragmatics, feeding therapy, etc...
3. Developmental Therapy
Play skills, pretend play, Floortime
4. Physical Therapy
balance, movement, coordination, tight heel cords
5. Assistive Technology
Sign language, PECS, Augmentative Communication evaluation, augmentative communication device--Dynavox MT4, use, programming, and implementation of device in therapy, home, school, public settings.
6. Preschool with very an almost Montessori concept.
Transition to Early Childhood
1. Developmental Preschool through school district (only lasted about 8 months)
2. Preschool used above with the almost Montessori concept very helpful! Now aged out of that program and will be dual enrollment: 1/2 homeschool and 1/2 public.
3. Speech therapy
Continued use of augmentative device / strategies, approximately 4 x / week, continued work on articulation, word retrieval, sequencing, problem solving / executive functions, pragmatics, comprehension, beginning literacy, more.
4. Feeding therapy
Specialists in feeding aversions, nutrition, GI doctor, dysphagia treatment, food chaining (Fraker and Walbert), found Eosinophilic Esophagitis and continued tx for that with severely restricted diet under supervision of doctor and dietician.
5. Occupational Therapy
Done for awhile at school no private OTs in our area, but since my sister is an OT SIPT certified, we do a lot of sensory integration at home, some fine motor work.
Due to rural area, there are no clinics available to use for sensory or other newer / different types of therapy.
Testing son has had done:
Genetic testing
Repeated MRIs
Repeated EEG testing
EKG testing
Upper GI scopes
Private evals for speech, aug comm
Educational evals
Would like to have:
neuropsych testing
Would consider:
auditory integration
spydyee one thing i would like to see the comunity work on is chaging the terms to describe where people are on the spectrum. the terms in use where developed before they changed the cat. from just plain ol AUTISM to ASD .then we might be able to pin point what works for who as it relates to where they are on the spectrum maybe a numbering system [you could have your son look it over and give us all a start] i really liked what he did with the vaccine/genetic stuff our most pressing need is financial and social opportunities for our son and then some actual training for him to learn how to have friends and hang with them[really there is a lot more but this is a start.] hope you are well i think my tping is improving [let me know when you are headed this way] butch cary NC
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