Friday, June 15, 2007
Categories of Services
In order to present a united front to government as to what services are needed the first step is to decide on categories of services. The recently passed combating autism bill sets aside $1 billion dollars over the next 5 years for everything. That number is crap and most of it will go to eugenics supporting research. We need to develop some general categories of services, then we need to place specific services within those categories. After that we will put a price tag on each of those services over the expected treatment period based on an average of all the families that use that treatment. I would appreciate it if my bio-med parents would get me some numbers on cost averages for each of the bio-med treatments. However, for right now lets begin with the categories. Bio-med is a big category and some parents are hesitant to move into it with both feet so is it possible to break it up into smaller categories with the most controversial treatment in a category all by itself. If this is not really possible without totally destroying the continuity of care for the child then we can just lump bio-med in a category of its own. Help me here googlybear and others. All my ND participants help me understand what interventions and supports that you see as critical in your life by posting what you have used or are currently using as supports to the "Services Desired" post and then posting the category they go in here in this post.
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7 comments:
I am going to post prices and what we are currently doing, but if I get some criticsm for our choices, I will delete the post.
If you want prices for Bio-med, this is what we are paying out of pocket in this year alone.
Testing: $2,000 at least, it will go higher
Chelation: &180 per IV (weekly)
HBOT: at least $4000 over the next 2 months
Supplements: $300 per month or more
Specialty foods: another extra $200 to the grocery bill at least
This is not including doctors visits and the MB12 shots we will be starting in a couple weeks. Also, I will be paying a babysitter to take care of my younger kids so we can do the HBOT, which is a whole other expense.
In the past we have paid between $60-$70 per visit 1-2x per week to chiropractors and cranial sacral therapists.
As for regular med, for a couple years we had no health insurance on our autie daughter at all because insurance companies consider it a preexisting medical condition. If people think DAN! is expensive, try conventional medicine without insurance. We've paid $300 before so someone at a walk in care could look at her for 5 minutes and say, "nope, she don't have pink eye, here's a note so the school will let her back in." We just got her on state funded insurance, but we have a monthly payment for it. So now we have to pay for two different insurance policies. The fun thing about state funded insurance is that all the good doctors don't take it. I am now going to have to fight the insurance company to get vision therapy and another neurological consultation. She needs an opthamologist and they want to send her to an optomotrist who works out of Lens Crafters.
googlybear if you get any criticism on this blog I will moderate and if necessary ban whoever attacks you or anyone else The rules on the welcome post apply across the board. This is a safe zone and everyone will play nice or as my kids call me THE ALL KNOWING MOTHER YODA PERSON will use "The Force" to "smack'em around" until they get the point. Actually I just run my mouth at them until they wished they had never done what ever it was they did to get me started. It is an effective non-violent non-aggressive way to drive a bunch of know-it-all young adults that can't find their rear ends with their hands tied to them crazy.
googlybear e-mail me and tell me what state you are in please unless you don't mind posting it. I can understand why you would not want to post it so use the e-mail on the blog and send it to me. I know of some resources in certain states so let me know where you are an I will see if there is some private funding to help a little no promises but I can try
foresam i removed your e-mail address because there are non-friendly lurkers and I don't want them to harass you My e-mail address is posted in the welcome message
Spydyee,
I can't find your email address. I probably am just not seeing it, but if you could post it again that would be great. Or you can contact me via my googly.mommabear@gmail.com account.
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